My son twisted his ankle on friday night. A sort of frequent occurance that we can now blame on having EDS . Saturday he came down with a cold that turned into brochitus Monday night. After a trip to the doctor for a breathing treatment and a scrip for antibiotics he is doing much better.
Today I also got the results of the echocardiograms my kids had on Monday. Thankfully both were in the normal range, (they measure the aeortic root diameter) but they said my son was on the high end of normal and should have another echocardiogram in two years instead of five years. Now I just have to find a doctor myself so that I can get my echocardiogram. We are supposed to have them every five years from now on. My nephew who was diagnosed with EDS first is in very bad shape physically. They are putting him in a wheelchair because his shoulders kept dislocating on crutches. The doctors say that his ligaments should eventually start tightening up again and then he can start doing hydrotherapy. Hopefully some of the damage can be reversed, although he will never be pain free. It is hard to believe that normal fitness activities, most sports and workouts can cause my family permanent debilitating damage. The genetecist said no contact sports, nothing that has repetitive impact on the joints, no weight bearing workouts or excercise that would involve stretching or lengthening the tendons. My yoga days are over :(